Friday, 22 June 2012

To the future...

I started writing this blog as a way of letting out the pent up feelings of frustration and sadness I was feeling during my struggle with CFS, fibromyalgia, severe anxiety and depression. And as far as I was concerned it was working. After my last post I think I was finally coming to grips with my feelings and had finally learnt to deal with my issues. Since my last post my health has slowly but steadily continued to improve from where I started after my diagnosis, and finally I have reached the point I'm at now. I am most definitely at my healthiest since becoming ill, I have gone from spending my days and nights in bed, not able to sleep or even sit up because of the pain and other physical symptoms, to holding on to a part-time job, babysitting and somewhat of a social life. Life is not perfect, but compared to how it was I feel pretty damn lucky.

That is not to say that everything has been great though. I feel like I'm in an extremely tentative position; if I don't do enough physically I will become weak again, and if I do too much I risk a relapse that could make the last few years of effort worth nothing. It doesn't sound too complicated, but when the line between too much and not enough is constantly being moved from day-to-day it can be a frustrating and stressful process. But I guess in the long run it's worth it, after all what is a bit of stress when I can have a life again?

I may have fallen a few times, and I definitely complained more than was necessary at times, but I'm proud of myself for how far I've come. I'm far from perfect, I'm flawed in more ways than I could begin to describe, but I'm strong. It is such a slow process from where I am now to where I would like to be but I know I can do it if I try. And there is no chance of me giving up now, not when I can look back and see the difference I've made to my life.


Adding on to a subject I covered more than once, the people around me have been a great influence on how well I am doing and I have to thank them for everything they've done. There are only a handful of people I am willing to let into my life completely, and the ones I do I trust implicitly. I know they have had a lot to deal with because of the issues I have, but I hope they know I am willing to do as much for them as they do for me. I don't take anything people do for me as granted.

As always, thank you for reading my blog.

7 comments:

  1. Most experts now agree that Chronic Fatigue Symptom is a distinct physical disease with physical symptoms. Although poorly understood, CFS is quite real and can be disabling for many people who have it.

    ReplyDelete
  2. Chronic Fatigue Symptoms are similar in character to high blood pressure and mild influenza so it may not be initially recognised by a medical specialist.

    ReplyDelete
  3. This is a really inspiring post, I hope things have continued to go well for you. I'm in a similar position; if everything goes right I could be almost back to normal, if it goes downhill I'm back to square one.

    I think it's always important to have setback strategies for those days when you are inexplicably tired. My doctor always tells me to maintain my exercise and activity baselines so I don't lose too much progress.

    Someone here might find my website helpful if they would like to read more about Chronic Fatigue Syndrome and how to deal with it. It's battlingcfs.com

    - Jeff

    ReplyDelete
  4. Hi Hoff! It is so great to hear you have been getting better! How are you doing now?

    ReplyDelete
  5. With all my past 10 years of suffering from cfs and dealing with doctors, I realised that there are a few tests that must be carried out and if diagnosed they should be treated as soon as possible are: hemoglobin, vitamin d, calcium, vitamin b12, thorough hormones, cortisol, thyroid, blood sugar and insulin resistence. Antidepressants better be avoided as they numb your nerves and senses.

    Along with that, regular stretching, gradual exercises and keeping yourself busy with some possible activity will contribute to the healing process. Healthy diet will help in general well being and fight against possible infectious and life long diseases. In my case herbal treatment, homeopathy, acupuncture, chiropractice, osteopathy nothing worked.


    ReplyDelete
  6. CFS Is a tough nut to crack. I sincerely hope you are doing well now. I suffered from it several years ago, and I figure all of our stories are helpful to those who are now struggling with this awful disease. Here is mine.
    http://dadswisdoms.com/chronic-fatigue-syndrome-shedding-some-light-for-the-patient/

    ReplyDelete
  7. You should look into fecal transplants. This study showed a 58-70% response rate to fecal transplants. http://www.eventscribe.com/2012/acg/ajaxcalls/postersinfo.asp?title=6110

    ReplyDelete

Any comments appreciated, don't just keep your opinions to yourself =)